Functional abilities and continence: the use of proxy respondents in research involving older people. 2000

C Shaw, and E McColl, and S Bond
Centre for Health Services Research, University of Newcastle upon Tyne, UK. cs32@leicester.ac.uk

As the use of proxy respondents is sometimes necessary in research involving older or disabled people it is important to assess the impact of this on research results. This study examined the concordance of proxy responses and index responses on questions concerning functional abilities and continence. Index respondents were women aged 65 years and older who were interviewed as part of a larger study of outcomes of fractured neck of femur, at 5 days post surgery. They were asked to nominate a proxy respondent who was interviewed using the same questions within a few days. Responses of proxy and index respondents were compared using percentage agreement and Kappa statistics. On questions regarding functional ability, proxy responses were found to be more reliable for personal care activities than for instrumental activities of daily living. This may be a result of questions concerning instrumental activities being somewhat more ambiguous and open to individual interpretation. Item non-response was low for all questions thus resulting in little missing data for proxy respondents. There was a tendency for more distant relationship and contact to produce better agreement, which is contrary to previous findings. Proxy responses were biased in the direction of an overestimation of functional incapacity and so researchers should be cautious in combining data from proxy and index respondents. Concordance was good for questions concerning urinary and faecal incontinence although non-response was higher than for functional ability questions. Concordance was not as great for more detailed questions concerning the timing and frequency of incontinence as these used graded response options, rather than simple yes/no responses.

UI MeSH Term Description Entries
D007407 Interviews as Topic Works about conversations with an individual or individuals held in order to obtain information about their background and other personal biographical data, their attitudes and opinions, etc. It includes works about school admission or job interviews. Group Interviews,Interviewers,Interviews, Telephone,Oral History as Topic,Group Interview,Interview, Group,Interview, Telephone,Interviewer,Interviews, Group,Telephone Interview,Telephone Interviews
D011184 Postoperative Period The period following a surgical operation. Period, Postoperative,Periods, Postoperative,Postoperative Periods
D012107 Research Design A plan for collecting and utilizing data so that desired information can be obtained with sufficient precision or so that an hypothesis can be tested properly. Experimental Design,Data Adjustment,Data Reporting,Design, Experimental,Designs, Experimental,Error Sources,Experimental Designs,Matched Groups,Methodology, Research,Problem Formulation,Research Methodology,Research Proposal,Research Strategy,Research Technics,Research Techniques,Scoring Methods,Adjustment, Data,Adjustments, Data,Data Adjustments,Design, Research,Designs, Research,Error Source,Formulation, Problem,Formulations, Problem,Group, Matched,Groups, Matched,Matched Group,Method, Scoring,Methods, Scoring,Problem Formulations,Proposal, Research,Proposals, Research,Reporting, Data,Research Designs,Research Proposals,Research Strategies,Research Technic,Research Technique,Scoring Method,Source, Error,Sources, Error,Strategies, Research,Strategy, Research,Technic, Research,Technics, Research,Technique, Research,Techniques, Research
D005242 Fecal Incontinence Failure of voluntary control of the anal sphincters, with involuntary passage of feces and flatus. Bowel Incontinence,Fecal Soiling,Incontinence, Bowel,Incontinence, Fecal,Soilings, Fecal
D005260 Female Females
D005265 Femoral Neck Fractures Fractures of the short, constricted portion of the thigh bone between the femur head and the trochanters. It excludes intertrochanteric fractures which are HIP FRACTURES. Femur Neck Fractures,Femoral Neck Fracture,Femur Neck Fracture
D006801 Humans Members of the species Homo sapiens. Homo sapiens,Man (Taxonomy),Human,Man, Modern,Modern Man
D000203 Activities of Daily Living The performance of the basic activities of self care, such as dressing, ambulation, or eating. ADL,Chronic Limitation of Activity,Limitation of Activity, Chronic,Activities, Daily Living,Activity, Daily Living,Daily Living Activities,Daily Living Activity,Living Activities, Daily,Living Activity, Daily
D000368 Aged A person 65 years of age or older. For a person older than 79 years, AGED, 80 AND OVER is available. Elderly
D000369 Aged, 80 and over Persons 80 years of age and older. Oldest Old

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