[Nurses who treat Parkinson patients: what do they know and what do they want to know?]. 2005

Juana Maria Senosiain García, and Ma Jesús Narvaiza Solís
Catedrática de Enfermería Médico-Quirúrgica, Escuela Universitaria de Enfermería, Universidad de Navarra, Pamplona.

To deal with Parkinson Disease, the education and the participation of the patient and his/her patient in the care of this disease are fundamental aspects. To know a patient's perceptions about his/her need for information, the patient's anxieties and the necessity to communicate with the medical team help to individualize the education provided for a patient. METHODS a general qualitative descriptive study developed by means of semi-structured interviews. METHODS 19 outpatients previously diagnosed with Parkinson's. The random method used was based on setting up interviews by the medical team by means of a computer. RESULTS The majority of the patients felt their knowledge level was sufficient, although some search for more information and others showed a fear to learn more. The main source of information comes from their neurologists. The patients think that the information related to the symptoms and the drugs (for Parkinson's) is adequate, but this information is lacking regarding emotional necessities and other personal aspects. The patients think that communication is fundamental when dealing with a chronic disease, and that there is a need for individualized, very human, relationships where besides technical competence, patients hope for comprehension, security confidence and the opportunity for patients to express themselves.

UI MeSH Term Description Entries
D008297 Male Males
D008875 Middle Aged An adult aged 45 - 64 years. Middle Age
D010300 Parkinson Disease A progressive, degenerative neurologic disease characterized by a TREMOR that is maximal at rest, retropulsion (i.e. a tendency to fall backwards), rigidity, stooped posture, slowness of voluntary movements, and a masklike facial expression. Pathologic features include loss of melanin containing neurons in the substantia nigra and other pigmented nuclei of the brainstem. LEWY BODIES are present in the substantia nigra and locus coeruleus but may also be found in a related condition (LEWY BODY DISEASE, DIFFUSE) characterized by dementia in combination with varying degrees of parkinsonism. (Adams et al., Principles of Neurology, 6th ed, p1059, pp1067-75) Idiopathic Parkinson Disease,Lewy Body Parkinson Disease,Paralysis Agitans,Primary Parkinsonism,Idiopathic Parkinson's Disease,Lewy Body Parkinson's Disease,Parkinson Disease, Idiopathic,Parkinson's Disease,Parkinson's Disease, Idiopathic,Parkinson's Disease, Lewy Body,Parkinsonism, Primary
D010353 Patient Education as Topic The teaching or training of patients concerning their own health needs. Education of Patients,Education, Patient,Patient Education
D011369 Professional-Patient Relations Interactions between health personnel and patients. Contacting Clients,Pharmacist-Patient Relations,Professional Patient Relationship,Client, Contacting,Clients, Contacting,Contacting Client,Pharmacist Patient Relations,Pharmacist-Patient Relation,Professional Patient Relations,Professional Patient Relationships,Professional-Patient Relation,Relation, Pharmacist-Patient,Relation, Professional-Patient,Relations, Pharmacist-Patient,Relations, Professional-Patient,Relationship, Professional Patient,Relationships, Professional Patient
D003142 Communication The exchange or transmission of ideas, attitudes, or beliefs between individuals or groups. Miscommunication,Misinformation,Social Communication,Communication Programs,Communications Personnel,Personal Communication,Communication Program,Communication, Personal,Communication, Social,Communications, Social,Miscommunications,Misinformations,Personnel, Communications,Program, Communication,Programs, Communication,Social Communications
D005260 Female Females
D006801 Humans Members of the species Homo sapiens. Homo sapiens,Man (Taxonomy),Human,Man, Modern,Modern Man
D000328 Adult A person having attained full growth or maturity. Adults are of 19 through 44 years of age. For a person between 19 and 24 years of age, YOUNG ADULT is available. Adults
D000368 Aged A person 65 years of age or older. For a person older than 79 years, AGED, 80 AND OVER is available. Elderly

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