[Chronically ill--chronically forgotten?--communication/mobility/everyday life]. 2007

R Mattern
Lehrstuhl für Allgemeine Pädagogik, Otto-Friedrich-Universität Bamberg, Germany. ruperta.mattern@ppp.unibamberg.de

In the course of the recent years, the policy for the needs of disabled people has started a fundamental paradigm shift. Central elements of the current policy for the needs of disabled people are prevention, rehabilitation and integration. Self-determination instead of care forms the guiding principle. An indistinct definition of chronic disease makes it difficult to obtain a general idea of structures in the care and support for people with chronic diseases. The following compilation examines requirements in social legislation and questions the quality of life by means of the three exemplary aspects: communication, mobility and everyday life. Here the question remains whether the current focus on health neglects any relevant components of chronic diseases. It turns out that people with a chronic illness, although social legislation has improved, are neglected the more support they need. Care as an elementary social principle must be discussed on an interdisciplinary basis and in the context of the whole society.

UI MeSH Term Description Entries
D011788 Quality of Life A generic concept reflecting concern with the modification and enhancement of life attributes, e.g., physical, political, moral, social environment as well as health and disease. HRQOL,Health-Related Quality Of Life,Life Quality,Health Related Quality Of Life
D002908 Chronic Disease Diseases which have one or more of the following characteristics: they are permanent, leave residual disability, are caused by nonreversible pathological alteration, require special training of the patient for rehabilitation, or may be expected to require a long period of supervision, observation, or care (Dictionary of Health Services Management, 2d ed). For epidemiological studies chronic disease often includes HEART DISEASES; STROKE; CANCER; and diabetes (DIABETES MELLITUS, TYPE 2). Chronic Condition,Chronic Illness,Chronically Ill,Chronic Conditions,Chronic Diseases,Chronic Illnesses,Condition, Chronic,Disease, Chronic,Illness, Chronic
D003143 Communication Aids for Disabled Equipment that provides mentally or physically disabled persons with a means of communication. The aids include display boards, typewriters, cathode ray tubes, computers, and speech synthesizers. The output of such aids includes written words, artificial speech, language signs, Morse code, and pictures. Augmentative and Alternative Communications Systems,Communication Aids for Handicapped,Communication Boards,Speech Synthesizers,Telecommunications Devices for the Deaf,TDD,TTY Telephone,Text Telecommunication,Text Telecommunication Devices,Text Telephone,Communication Board,Speech Synthesizer,Synthesizer, Speech,Synthesizers, Speech,TTY Telephones,Telecommunication Device, Text,Telecommunication Devices, Text,Telecommunication, Text,Telecommunications, Text,Text Telecommunication Device,Text Telecommunications,Text Telephones
D005858 Germany A country in central Europe, bordering the Baltic Sea and the North Sea, between the Netherlands and Poland, south of Denmark. The capital is Berlin.
D006233 Disabled Persons Persons with physical or mental disabilities that affect or limit their activities of daily living and that may require special accommodations. Handicapped,People with Disabilities,Persons with Disabilities,Physically Challenged,Physically Handicapped,Physically Disabled,Disabilities, People with,Disabilities, Persons with,Disability, Persons with,Disabled Person,Disabled, Physically,Handicapped, Physically,People with Disability,Person, Disabled,Persons with Disability,Persons, Disabled
D006801 Humans Members of the species Homo sapiens. Homo sapiens,Man (Taxonomy),Human,Man, Modern,Modern Man
D019033 Delivery of Health Care, Integrated A health care system which combines physicians, hospitals, and other medical services with a health plan to provide the complete spectrum of medical care for its customers. In a fully integrated system, the three key elements - physicians, hospital, and health plan membership - are in balance in terms of matching medical resources with the needs of purchasers and patients. (Coddington et al., Integrated Health Care: Reorganizing the Physician, Hospital and Health Plan Relationship, 1994, p7) Integrated Delivery Systems,Integrated Health Care Systems,Delivery System, Integrated,Delivery Systems, Integrated,Integrated Delivery System,System, Integrated Delivery,Systems, Integrated Delivery
D040841 Resource Allocation Societal or individual decisions about the equitable distribution of available resources. Allocation of Resources,Allocative Efficiency,Allocation, Resource,Efficiency, Allocative,Resources Allocation

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