Parental experiences of a paediatric cochlear implant programme. 2000

L C Edwards, and B M MacArdle, and A Doney, and S Bellman
Cochlear Implant Programme, Great Ormond Street Hospital for Children, Great Ormond Street, London WC1N 3JH, UK.

Although cochlear implantation is a well-established procedure in profoundly deaf children, very little research has investigated whether parents are satisfied with the treatment (including assessment, surgery and rehabilitation) or its outcome, and whether it has met their expectations. In this study, 44 parents of children who had received cochlear implants completed a confidential postal questionnaire. Results indicated that the majority of parents felt that the information they and their child received was both sufficient and appropriate. Many parents experienced more distress than they anticipated, but perceived their child as having experienced less physical discomfort than expected. Some suggestions for improving the service were made, but in general it was felt that little more could be done to inform our 'consumers', or to reduce levels of stress.

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