Assessing family-provider partnerships and satisfaction with care among US children with special health care needs. 2011

Mary Kay Kenney, and Diana Denboba, and Bonnie Strickland, and Paul W Newacheck
US Department of Health and Human Services, Maternal and Child Health Bureau, Health Resources and Services Administration, Rockville, Maryland 20857, USA. mkenney@hrsa.gov

OBJECTIVE Family-provider partnerships and satisfaction with services together are one of the Health Resources and Services Administration's (HRSA) Maternal and Child Health Bureau's (MCHB) 6 core outcomes for children with special health care needs (CSHCN) and are tracked using the 2005-2006 National Survey of Children with Special Health Care Needs. Our objectives were to examine demographic, health, and other correlates/associations, with the perception of family-provider partnership and satisfaction with care; determine the associations between these perceptions and other child/family outcomes; and evaluate differences in the perception of partnership and satisfaction between the families of CSHCN and other children. METHODS We analyzed data for 40,723 CSHCN from the 2005-2006 National Survey of CSHCN and assessed the prevalence of family-provider partnerships and satisfaction with care and their association with other family-child outcomes. The partnership/satisfaction core outcome results were compared with a referent group of children without special needs included in the 2005-2006 survey. RESULTS The proportion of CSHCN attaining the core outcome was 57.4% and was lower for households with no health insurance, minority ethnic status, non-English speakers, nontraditional family structure, lower income, and lower functioning CSHCN. Lower rates of satisfaction and partnership were associated with poorer child and family outcomes. Disparities in attainment rates were noted for CSHCN versus other children. CONCLUSIONS Although parent perceptions of family-provider partnership were relatively high, satisfaction with care contributed to an overall lower attainment rate for the partnership/satisfaction core outcome. Providers, families, government, and advocates need to work together to increase attainment of family-provider partnerships and satisfactory care experiences.

UI MeSH Term Description Entries
D007223 Infant A child between 1 and 23 months of age. Infants
D007231 Infant, Newborn An infant during the first 28 days after birth. Neonate,Newborns,Infants, Newborn,Neonates,Newborn,Newborn Infant,Newborn Infants
D011368 Professional-Family Relations The interactions between the professional person and the family. Professional Family Relationship,Family Relationship, Professional,Family Relationships, Professional,Professional Family Relations,Professional Family Relationships,Professional-Family Relation,Relation, Professional-Family,Relations, Professional-Family,Relationship, Professional Family,Relationships, Professional Family
D002648 Child A person 6 to 12 years of age. An individual 2 to 5 years old is CHILD, PRESCHOOL. Children
D002662 Child Health Services Organized services to provide health care for children. Infant Health Services,Child Services, Health,Health Services, Child,Health Services, Infant,Infant Services, Health,Services, Child Health,Services, Infant Health,Child Health Service,Health Service, Child,Health Service, Infant,Infant Health Service,Service, Child Health,Service, Infant Health
D002675 Child, Preschool A child between the ages of 2 and 5. Children, Preschool,Preschool Child,Preschool Children
D006297 Health Services Accessibility The degree to which individuals are inhibited or facilitated in their ability to gain entry to and to receive care and services from the health care system. Factors influencing this ability include geographic, architectural, transportational, and financial considerations, among others. Access To Care, Health,Access to Care,Access to Contraception,Access to Health Care,Access to Health Services,Access to Medications,Access to Medicines,Access to Therapy,Access to Treatment,Accessibility of Health Services,Availability of Health Services,Contraception Access,Contraceptive Access,Medication Access,Accessibility, Health Services,Contraceptive Availability,Health Services Geographic Accessibility,Program Accessibility,Access to Cares,Access to Contraceptions,Access to Medication,Access to Medicine,Access to Therapies,Access to Treatments,Access, Contraception,Access, Contraceptive,Access, Medication,Accessibilities, Health Services,Accessibility, Program,Availability, Contraceptive,Care, Access to,Cares, Access to,Contraception, Access to,Contraceptive Accesses,Health Services Availability,Medication Accesses,Medication, Access to,Medicine, Access to,Medicines, Access to,Therapy, Access to,Treatment, Access to
D006306 Health Surveys A systematic collection of factual data pertaining to health and disease in a human population within a given geographic area. Abortion Surveys,Abortion Survey,Health Survey,Survey, Abortion,Survey, Health,Surveys, Abortion,Surveys, Health
D006801 Humans Members of the species Homo sapiens. Homo sapiens,Man (Taxonomy),Human,Man, Modern,Modern Man
D000293 Adolescent A person 13 to 18 years of age. Adolescence,Youth,Adolescents,Adolescents, Female,Adolescents, Male,Teenagers,Teens,Adolescent, Female,Adolescent, Male,Female Adolescent,Female Adolescents,Male Adolescent,Male Adolescents,Teen,Teenager,Youths

Related Publications

Mary Kay Kenney, and Diana Denboba, and Bonnie Strickland, and Paul W Newacheck
February 2023, The Journal of pediatrics,
Mary Kay Kenney, and Diana Denboba, and Bonnie Strickland, and Paul W Newacheck
October 2018, Pediatric clinics of North America,
Mary Kay Kenney, and Diana Denboba, and Bonnie Strickland, and Paul W Newacheck
June 2010, Pediatrics,
Mary Kay Kenney, and Diana Denboba, and Bonnie Strickland, and Paul W Newacheck
October 2017, Pediatric annals,
Mary Kay Kenney, and Diana Denboba, and Bonnie Strickland, and Paul W Newacheck
January 2017, Pediatrics,
Mary Kay Kenney, and Diana Denboba, and Bonnie Strickland, and Paul W Newacheck
January 1992, Issues in comprehensive pediatric nursing,
Mary Kay Kenney, and Diana Denboba, and Bonnie Strickland, and Paul W Newacheck
March 2022, Academic pediatrics,
Mary Kay Kenney, and Diana Denboba, and Bonnie Strickland, and Paul W Newacheck
September 2010, Maternal and child health journal,
Mary Kay Kenney, and Diana Denboba, and Bonnie Strickland, and Paul W Newacheck
September 2021, Pediatrics,
Mary Kay Kenney, and Diana Denboba, and Bonnie Strickland, and Paul W Newacheck
August 2021, Pediatrics,
Copied contents to your clipboard!