Parental bereavement needs in the pediatric intensive care unit: review of available measures. 2011

Kathleen L Meert, and Stephanie Myers Schim, and Sherylyn H Briller
Children's Hospital of Michigan, Department of Pediatrics, Wayne State University, Detroit, Michigan, USA. kmeert@med.wayne.edu

BACKGROUND Pediatric intensive care units (PICUs) are highly technological settings in which advanced care is used to restore health to critically ill children; however, they are also places where children die. Understanding the needs of parents bereaved in this setting is essential for better family care. OBJECTIVE To systematically review the extant literature to identify instruments potentially useful for assessing the needs of parents bereaved in the PICU. METHODS We searched PubMed™, CINAHL™, and Health and Psychosocial Instruments™ for tools to assess family needs during a relative's hospitalization. From 357 abstracts, 96 articles were reviewed that described 31 instruments. Fifteen instruments were selected based on their (1) use with parents and/or the bereaved, (2) use in PICU, neonatal intensive care, or pediatric wards, (3) measurement of family needs or related constructs, and (4) published psychometrics. Need-related constructs included satisfaction with family care and environmental stress since these have been related to met and unmet needs, respectively. RESULTS No instruments specifically designed to assess the needs of parents bereaved in the PICU were identified. Most tools reviewed showed validity and reliability in the populations and settings for which the tools were intended; however, validity and reliability were not established for parents bereaved in the PICU. No tools addressed the full range of needs for parents bereaved in the PICU. CONCLUSIONS A new instrument is needed to adequately assess the needs of parents bereaved in the PICU. Patient conditions, illness trajectories, and life course perspectives must be considered in designing a new tool.

UI MeSH Term Description Entries
D010290 Parents Persons functioning as natural, adoptive, or substitute parents. The heading includes the concept of parenthood as well as preparation for becoming a parent. Step-Parents,Parental Age,Parenthood Status,Stepparent,Age, Parental,Ages, Parental,Parent,Parental Ages,Status, Parenthood,Step Parents,Step-Parent,Stepparents
D006801 Humans Members of the species Homo sapiens. Homo sapiens,Man (Taxonomy),Human,Man, Modern,Modern Man
D001601 Bereavement Refers to the whole process of grieving and mourning and is associated with a deep sense of loss and sadness. Bereavements
D015278 Intensive Care Units, Pediatric Hospital units providing continuous surveillance and care to acutely ill infants and children. Neonates are excluded since INTENSIVE CARE UNITS, NEONATAL is available. ICU, Pediatric,Pediatric ICU,Pediatric Intensive Care Unit,Pediatric Intensive Care Units,ICUs, Pediatric,Pediatric ICUs
D020380 Needs Assessment Systematic identification of a population's needs or the assessment of individuals to determine the proper level of services needed. Assessment of Health Care Needs,Determination of Health Care Needs,Educational Needs Assessment,Assessment of Healthcare Needs,Determination of Healthcare Needs,Assessment, Educational Needs,Needs Assessment, Educational,Needs Assessment, Healthcare,Needs Assessments,Needs Assessments, Educational,Needs Assessments, Healthcare

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