Biomaterial Database

Respite care needs for families of children with life-limiting conditions. 2011

Janet Bowman, and Ruth Butcher, and Sue Dolby

Jessie May Trust, Kingswood, Bristol.

The Framework for Respite in Partnership with Parents (FRiPP), developed by the Jessie May Trust is a tool to enable a standardised and equitable allocation of a limited resource. FRiPP reduces the opportunity for subjective allocation of respite-based care stemming from the professional-led model of telling families what they need. The tool is aimed at engaging families in identifying and articulating the support they require. After a successful pilot and evaluation, FRiPP is now used for all families on the Jessie May Trust's caseload. The authors reflect on the tool's development and implementation process in the context of promoting and protecting partnership working.

UI	MeSH Term	Description	Entries
D012144	Respite Care	Patient care provided in the home or institution intermittently in order to provide temporary relief to the family home care giver.	In-Home Respite,In-Home Respite Care,Care, In-Home Respite,Care, Respite,In Home Respite,In Home Respite Care,In-Home Respite Cares,Respite Care, In-Home,Respite Cares,Respite, In-Home
D002648	Child	A person 6 to 12 years of age. An individual 2 to 5 years old is CHILD, PRESCHOOL.	Children
D005190	Family	A social group consisting of parents or parent substitutes and children.	Family Life Cycles,Family Members,Family Life Cycle,Family Research,Filiation,Kinship Networks,Relatives,Families,Family Member,Kinship Network,Life Cycle, Family,Life Cycles, Family,Network, Kinship,Networks, Kinship,Research, Family
D006301	Health Services Needs and Demand	Health services required by a population or community as well as the health services that the population or community is able and willing to pay for.	Health Services Needs,Needs,Needs and Demand, Health Services,Target Population,Health Services Need,Need, Health Services,Needs, Health Services,Population, Target,Populations, Target,Target Populations
D006801	Humans	Members of the species Homo sapiens.	Homo sapiens,Man (Taxonomy),Human,Man, Modern,Modern Man
D015276	Health Care Rationing	Planning for the equitable allocation, apportionment, or distribution of available health resources.	Allocation of Health Care Resources,Allocation of Healthcare Resources,Rationing, Health Care,Healthcare Rationing,Healthcare Resources Allocation,Healthcare Resources Allocations,Rationing, Healthcare,Resources Allocation, Healthcare
D017008	Negotiating	The process of bargaining in order to arrive at an agreement or compromise on a matter of importance to the parties involved. It also applies to the hearing and determination of a case by a third party chosen by the parties in controversy, as well as the interposing of a third party to reconcile the parties in controversy.	Arbitrating,Mediating,Arbitration,Conflict Resolution,Mediation,Negotiation,Conflict Resolutions,Negotiations,Resolution, Conflict
D019452	Terminally Ill	Persons with an incurable or irreversible illness at the end stage that will result in death within a short time. (From O'Leary et al., Lexikon: Dictionary of Health Care Terms, Organizations, and Acronyms for the Era of Reform, 1994, p780)	Ill, Terminally