Research ethics education for community-engaged research: a review and research agenda. 2012

Emily E Anderson, and Stephanie Solomon, and Elizabeth Heitman, and James M DuBois, and Celia B Fisher, and Rhonda G Kost, and Mary Ellen Lawless, and Cornelia Ramsey, and Bonnie Jones, and Alice Ammerman, and Lainie Friedman Ross
Neiswanger Institute for Bioethics and Health Policy, Stritch School of Medicine, Loyola University Chicago, Maywood, IL 60153, USA. emanderson@lumc.edu

Community engagement is increasingly becoming an integral part of research. "Community-engaged research" (CEnR) introduces new stakeholders as well as unique challenges to the protection of participants and the integrity of the research process. We--a group of representatives of CTSA-funded institutions and others who share expertise in research ethics and CEnR--have identified gaps in the literature regarding (1) ethical issues unique to CEnR; (2) the particular instructional needs of academic investigators, community research partners, and IRB members; and (3) best practices for teaching research ethics. This paper presents what we know, as well as what we still need to learn, in order to develop quality research ethics educational materials tailored to the full range of stakeholder groups in CEnR.

UI MeSH Term Description Entries
D012107 Research Design A plan for collecting and utilizing data so that desired information can be obtained with sufficient precision or so that an hypothesis can be tested properly. Experimental Design,Data Adjustment,Data Reporting,Design, Experimental,Designs, Experimental,Error Sources,Experimental Designs,Matched Groups,Methodology, Research,Problem Formulation,Research Methodology,Research Proposal,Research Strategy,Research Technics,Research Techniques,Scoring Methods,Adjustment, Data,Adjustments, Data,Data Adjustments,Design, Research,Designs, Research,Error Source,Formulation, Problem,Formulations, Problem,Group, Matched,Groups, Matched,Matched Group,Method, Scoring,Methods, Scoring,Problem Formulations,Proposal, Research,Proposals, Research,Reporting, Data,Research Designs,Research Proposals,Research Strategies,Research Technic,Research Technique,Scoring Method,Source, Error,Sources, Error,Strategies, Research,Strategy, Research,Technic, Research,Technics, Research,Technique, Research,Techniques, Research
D012108 Research Personnel Those individuals engaged in research. Clinical Investigator,Clinical Investigators,Researchers,Investigator, Clinical,Investigators,Investigators, Clinical,Survey Personnel,Investigator,Personnel, Research,Personnel, Survey,Researcher
D012111 Residence Characteristics Elements of residence that characterize a population. They are applicable in determining need for and utilization of health services. Community,Domicile,Living Arrangements,Neighborhood,Place of Birth,Residential Selection,Arrangement, Living,Birth Place,Communities,Domiciles,Living Arrangement,Neighborhoods,Residence Characteristic
D003256 Community Participation Involvement of members of the community in the affairs of that community. Community Action,Consumer Involvement,Consumer Participation,Community Involvement,Public Participation,Action, Community,Actions, Community,Community Actions,Community Involvements,Consumer Involvements,Involvement, Community,Involvement, Consumer,Involvements, Community,Participation, Community,Participation, Consumer,Participation, Public
D006801 Humans Members of the species Homo sapiens. Homo sapiens,Man (Taxonomy),Human,Man, Modern,Modern Man
D019985 Benchmarking Method of measuring performance against established standards of best practice. Benchmarking, Health Care,Benchmarks,Best Practice Analysis,Metrics,Benchmark,Benchmarking, Healthcare,Analysis, Best Practice,Health Care Benchmarking,Healthcare Benchmarking
D028744 Ethics Committees, Research Hospital or other institutional committees established to protect the welfare of research subjects. Federal regulations (the "Common Rule" (45 CFR 46)) mandate the use of these committees to monitor federally-funded biomedical and behavioral research involving human subjects. Institutional Review Boards,Board, Institutional Review,Boards, Institutional Review,Ethics Committee, Research,IRB,IRBs,Institutional Review Board,Research Ethics Committee,Research Ethics Committees,Review Board, Institutional,Review Boards, Institutional,Committee, Research Ethics,Committees, Research Ethics
D032984 Ethics, Research The moral obligations governing the conduct of research. Used for discussions of research ethics as a general topic. Research Ethics

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