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Linking cancer registry and hospital discharge data for treatment surveillance. 2013

Ge Lin, and Jihyun Ma, and Lei Zhang, and Ming Qu
Lin, Department of Health Services Research & Administration, College of Public Health, University of Nebraska Medical Center, NE 68198-4350, USA. ge.lin@nebraska.gov

Cancer registry data often lack complete chemotherapy and radiation therapy information. To conduct treatment disparity surveillance, we linked 2005-2009 Nebraska Cancer Registry data with Nebraska hospital discharge data. Due to the high quality of both datasets and the proposed linkage procedure, we had a linkage rate of 97 percent. We demonstrate the utilization of the linked dataset in case finding, treatment update, and treatment surveillance. The results show that the linked dataset is likely to identify up to 5 percent of potential missed cases. We investigated the use of radiation therapy in treating colorectal and breast cancers as case-finding examples. The linked dataset found 12 percent and 14 percent more treatment cases for colorectal and breast cancer patients, respectively.

UI MeSH Term Description Entries
D009329 Nebraska State bounded on the north by South Dakota, on the east by Iowa and Missouri, on the south by Kansas and Colorado, and on the west by Colorado and Wyoming.
D009369 Neoplasms New abnormal growth of tissue. Malignant neoplasms show a greater degree of anaplasia and have the properties of invasion and metastasis, compared to benign neoplasms. Benign Neoplasm,Cancer,Malignant Neoplasm,Tumor,Tumors,Benign Neoplasms,Malignancy,Malignant Neoplasms,Neoplasia,Neoplasm,Neoplasms, Benign,Cancers,Malignancies,Neoplasias,Neoplasm, Benign,Neoplasm, Malignant,Neoplasms, Malignant
D010351 Patient Discharge The administrative process of discharging the patient, alive or dead, from hospitals or other health facilities. Discharge Planning,Discharge Plannings,Discharge, Patient,Discharges, Patient,Patient Discharges,Planning, Discharge,Plannings, Discharge
D010355 Patient Identification Systems Organized procedures for establishing patient identity, including use of bracelets, etc. Patient Tracking,Identification System, Patient,Identification Systems, Patient,Patient Identification System,Patient Trackings,System, Patient Identification,Systems, Patient Identification,Tracking, Patient,Trackings, Patient
D012042 Registries The systems and processes involved in the establishment, support, management, and operation of registers, e.g., disease registers. Parish Registers,Population Register,Parish Register,Population Registers,Register, Parish,Register, Population,Registers, Parish,Registers, Population,Registry
D003625 Data Collection Systematic gathering of data for a particular purpose from various sources, including questionnaires, interviews, observation, existing records, and electronic devices. The process is usually preliminary to statistical analysis of the data. Data Collection Methods,Dual Data Collection,Collection Method, Data,Collection Methods, Data,Collection, Data,Collection, Dual Data,Data Collection Method,Method, Data Collection,Methods, Data Collection
D006751 Hospital Information Systems Integrated, computer-assisted systems designed to store, manipulate, and retrieve information concerned with the administrative and clinical aspects of providing medical services within the hospital. Multi-Hospital Information Systems,Information System, Hospital,Information System, Multihospital,Information Systems, Hospital,Information Systems, Multihospital,Multihospital Information Systems,Hospital Information System,Information System, Multi-Hospital,Information Systems, Multi-Hospital,Multi Hospital Information Systems,Multi-Hospital Information System,Multihospital Information System
D006801 Humans Members of the species Homo sapiens. Homo sapiens,Man (Taxonomy),Human,Man, Modern,Modern Man
D012955 Societies, Medical Societies whose membership is limited to physicians. Medical Societies,Medical Society,Society, Medical
D054625 Healthcare Disparities Differences in access to or availability of medical facilities and services. Disparities, Healthcare,Health Care Disparities,Health Care Inequalities,Healthcare Disparity,Healthcare Inequalities,Disparities, Health Care,Disparity, Health Care,Disparity, Healthcare,Health Care Disparity,Health Care Inequality,Healthcare Inequality,Inequalities, Health Care,Inequalities, Healthcare,Inequality, Health Care,Inequality, Healthcare

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