[Dying in Rhineland-Palatinate (Germany): preferred and actual place of death]. 2013

L C Escobar Pinzon, and M Claus, and K I Zepf, and S Letzel, and M Weber
Institut für Arbeits-, Sozial- und Umweltmedizin, Universitätsmedizin der Johannes Gutenberg-Universität Mainz.

BACKGROUND Until now, no official statistics about the place of death in Germany exist. OBJECTIVE The aim of our study was to determine where people died in Rhineland-Palatinate (Germany) in 2008, and which place of death was preferred. We further aimed to identify influencing factors on dying at home vs. dying in an -institution. METHODS Our cross-sectional survey was based on a random sample of 5000 inhabitants of Rhineland-Palatinate (Germany) that had died between May and August 2008. Relatives of these deceased persons received a questionnaire containing socio-demographic and health-specific questions. RESULTS After removing duplicates, 4967 questionnaires were sent out. 3832 questionnaires were delivered and 1378 completed, leading to a response rate of 36.0%. 38.2% of the deceased died at home, 39.3% in a hospital, 13.4% in a nursing home, 7.5% in a palliative care facility and 1.6% elsewhere. 93.8% of the deceased who expressed a preference wanted to die at home. Altogether, 58.3% had their wish fulfilled. Suffering from cancer (aOR:1.30; 95% CI:1.01-1.68), social support (aOR being married:1.33; 95% CI:1.04-1.70; aOR having a non-/part-time working relative:1.71; 95% CI: 1.28-2.29), a high care level (aOR care level II:2.79; 95% CI: 2.06-3.79; aOR care level III: 4.96; 95% CI:3.40-7.24), and living in a rural municipality (aOR: 1.36; 95% CI:1.01-1.84) were factors favouring=BE; AE=favoring home death compared with institutional death. CONCLUSIONS Altogether, 4 of 10 patients who wanted to die at home could not die in their preferred place. Future studies should focus on the question as to what extent the strengthening of outpatient care structures, e. g., by introducing specialised=BE spezialized=AE outpatient palliative care, can allow more people to die at home.

UI MeSH Term Description Entries
D008297 Male Males
D008875 Middle Aged An adult aged 45 - 64 years. Middle Age
D010166 Palliative Care Care alleviating symptoms without curing the underlying disease. (Stedman, 25th ed) Palliative Treatment,Palliative Supportive Care,Palliative Surgery,Palliative Therapy,Surgery, Palliative,Therapy, Palliative,Care, Palliative,Palliative Treatments,Supportive Care, Palliative,Treatment, Palliative,Treatments, Palliative
D011159 Population Surveillance Ongoing scrutiny of a population (general population, study population, target population, etc.), generally using methods distinguished by their practicability, uniformity, and frequently their rapidity, rather than by complete accuracy. Surveillance, Population
D011795 Surveys and Questionnaires Collections of data obtained from voluntary subjects. The information usually takes the form of answers to questions, or suggestions. Community Survey,Nonrespondent,Questionnaire,Questionnaires,Respondent,Survey,Survey Method,Survey Methods,Surveys,Baseline Survey,Community Surveys,Methodology, Survey,Nonrespondents,Questionnaire Design,Randomized Response Technique,Repeated Rounds of Survey,Respondents,Survey Methodology,Baseline Surveys,Design, Questionnaire,Designs, Questionnaire,Methods, Survey,Questionnaire Designs,Questionnaires and Surveys,Randomized Response Techniques,Response Technique, Randomized,Response Techniques, Randomized,Survey, Baseline,Survey, Community,Surveys, Baseline,Surveys, Community,Techniques, Randomized Response
D003430 Cross-Sectional Studies Studies in which the presence or absence of disease or other health-related variables are determined in each member of the study population or in a representative sample at one particular time. This contrasts with LONGITUDINAL STUDIES which are followed over a period of time. Disease Frequency Surveys,Prevalence Studies,Analysis, Cross-Sectional,Cross Sectional Analysis,Cross-Sectional Survey,Surveys, Disease Frequency,Analyses, Cross Sectional,Analyses, Cross-Sectional,Analysis, Cross Sectional,Cross Sectional Analyses,Cross Sectional Studies,Cross Sectional Survey,Cross-Sectional Analyses,Cross-Sectional Analysis,Cross-Sectional Study,Cross-Sectional Surveys,Disease Frequency Survey,Prevalence Study,Studies, Cross-Sectional,Studies, Prevalence,Study, Cross-Sectional,Study, Prevalence,Survey, Cross-Sectional,Survey, Disease Frequency,Surveys, Cross-Sectional
D005260 Female Females
D005858 Germany A country in central Europe, bordering the Baltic Sea and the North Sea, between the Netherlands and Poland, south of Denmark. The capital is Berlin.
D006699 Home Care Services Community health and NURSING SERVICES providing coordinated multiple services to the patient at the patient's homes. These home-care services are provided by a visiting nurse, home health agencies, HOSPITALS, or organized community groups using professional staff for care delivery. It differs from HOME NURSING which is provided by non-professionals. Domiciliary Care,Home Health Care,Care Services, Home,Home Care,Services, Home Care,Care, Domiciliary,Care, Home,Home Care Service,Service, Home Care
D006801 Humans Members of the species Homo sapiens. Homo sapiens,Man (Taxonomy),Human,Man, Modern,Modern Man

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