Does patient activation level affect the cancer patient journey? 2017

Judith H Hibbard, and Eldon Mahoney, and Ellen Sonet
University of Oregon, Health Policy Research Group, Eugene, OR 97403-1209, USA. Electronic address: jhibbard@uoregon.edu.

OBJECTIVE We assess how patient activation is associated with behaviors and experiences of people with cancer, including: understanding risks; making treatment decisions; communicating with providers; coping with symptoms; and adhering to regimens. METHODS The study utilizes survey data from six surveys each including 500 cancer survivors. Multivariate analyses are presented. RESULTS Higher activated patients are more than 9 times more likely to feel their treatment plans reflect their values, 4.5 times more likely to cope with side effects, and almost 3.3 times more likely to initiate a healthier diet after their diagnosis, than are less activated patients. Less activated patients are less likely understand their diagnosis, to follow treatment regimens, and to be satisfied with their care. CONCLUSIONS The findings show that all along the care continuum, patient activation is associated with differences in experiences. CONCLUSIONS The findings point to the value of assessing patients' activation levels at the beginning of their cancer experience.

UI MeSH Term Description Entries
D008297 Male Males
D008875 Middle Aged An adult aged 45 - 64 years. Middle Age
D009369 Neoplasms New abnormal growth of tissue. Malignant neoplasms show a greater degree of anaplasia and have the properties of invasion and metastasis, compared to benign neoplasms. Benign Neoplasm,Cancer,Malignant Neoplasm,Tumor,Tumors,Benign Neoplasms,Malignancy,Malignant Neoplasms,Neoplasia,Neoplasm,Neoplasms, Benign,Cancers,Malignancies,Neoplasias,Neoplasm, Benign,Neoplasm, Malignant,Neoplasms, Malignant
D010358 Patient Participation Patient involvement in the decision-making process in matters pertaining to health. Patient Activation,Patient Empowerment,Patient Engagement,Patient Involvement,Patient Participation Rates,Activation, Patient,Empowerment, Patient,Engagement, Patient,Involvement, Patient,Participation Rate, Patient,Participation Rates, Patient,Participation, Patient,Patient Participation Rate
D010817 Physician-Patient Relations The interactions between physician and patient. Doctor-Patient Relations,Doctor Patient Relations,Physician Patient Relations,Physician Patient Relationship,Doctor Patient Relation,Doctor-Patient Relation,Physician Patient Relation,Physician Patient Relationships,Physician-Patient Relation,Relation, Doctor Patient,Relation, Doctor-Patient,Relation, Physician Patient,Relation, Physician-Patient,Relations, Doctor Patient,Relations, Doctor-Patient,Relations, Physician Patient,Relations, Physician-Patient,Relationship, Physician Patient,Relationships, Physician Patient
D011788 Quality of Life A generic concept reflecting concern with the modification and enhancement of life attributes, e.g., physical, political, moral, social environment as well as health and disease. HRQOL,Health-Related Quality Of Life,Life Quality,Health Related Quality Of Life
D011795 Surveys and Questionnaires Collections of data obtained from voluntary subjects. The information usually takes the form of answers to questions, or suggestions. Community Survey,Nonrespondent,Questionnaire,Questionnaires,Respondent,Survey,Survey Method,Survey Methods,Surveys,Baseline Survey,Community Surveys,Methodology, Survey,Nonrespondents,Questionnaire Design,Randomized Response Technique,Repeated Rounds of Survey,Respondents,Survey Methodology,Baseline Surveys,Design, Questionnaire,Designs, Questionnaire,Methods, Survey,Questionnaire Designs,Questionnaires and Surveys,Randomized Response Techniques,Response Technique, Randomized,Response Techniques, Randomized,Survey, Baseline,Survey, Community,Surveys, Baseline,Surveys, Community,Techniques, Randomized Response
D005260 Female Females
D006801 Humans Members of the species Homo sapiens. Homo sapiens,Man (Taxonomy),Human,Man, Modern,Modern Man
D000223 Adaptation, Psychological A state of harmony between internal needs and external demands and the processes used in achieving this condition. (From APA Thesaurus of Psychological Index Terms, 8th ed). Behavior, Adaptive,Healthy Adaptation,Positive Adaptation,Psychological Recovery,Adaptation, Psychologic,Adjustment,Psychological Adaptation,Adaptation, Healthy,Adaptation, Positive,Adaptive Behavior,Adaptive Behaviors,Healthy Adaptations,Positive Adaptations,Psychologic Adaptation,Psychological Recoveries,Recovery, Psychological

Related Publications

Judith H Hibbard, and Eldon Mahoney, and Ellen Sonet
January 2009, RNA biology,
Judith H Hibbard, and Eldon Mahoney, and Ellen Sonet
January 2006, Ethnicity & disease,
Judith H Hibbard, and Eldon Mahoney, and Ellen Sonet
January 2024, Patient education and counseling,
Judith H Hibbard, and Eldon Mahoney, and Ellen Sonet
March 2002, Journal of the National Medical Association,
Judith H Hibbard, and Eldon Mahoney, and Ellen Sonet
May 2008, Urology,
Judith H Hibbard, and Eldon Mahoney, and Ellen Sonet
January 2019, PloS one,
Judith H Hibbard, and Eldon Mahoney, and Ellen Sonet
January 2013, Studies in health technology and informatics,
Judith H Hibbard, and Eldon Mahoney, and Ellen Sonet
January 2011, International journal of health care quality assurance,
Judith H Hibbard, and Eldon Mahoney, and Ellen Sonet
October 2002, Postgraduate medical journal,
Judith H Hibbard, and Eldon Mahoney, and Ellen Sonet
December 1991, British journal of rheumatology,
Copied contents to your clipboard!