Biomaterial Database

The basic care needs of profoundly mentally retarded children with multiple handicaps. 1988

B Hagberg, and K Edebol-Tysk, and B Edström

Department of Paediatrics II, Ostra Sjukhuset, Goteborg, Sweden.

The ability profiles, aetiological patterns and basic care needs for a small minority of the most seriously multi-impaired and profoundly mentally handicapped children were analysed. The analyses were based on (1) a care-load study (1980-81) of a population-based series of 53 children and adolescents born in 1966-76, representing the most profoundly retarded third of those with and IQ less than 50 in the city of Gothenburg, and (2) 10 years clinical experience of a paediatric multi-impairment unit, including a cross-sectional consensus evaluation of the children being cared for in August 1986. It is concluded that these children represent a long-term paediatric care-group in need of continuous and life-long baby-care, with access to medical support and service. When it is not possible to care for these children in their own homes, it cannot be realistically expected that they can be included in a normalisation scheme, implying that they can become integrated residentially and socially in society and participate in traditional training-school programmes.

UI	MeSH Term	Description	Entries
D007223	Infant	A child between 1 and 23 months of age.	Infants
D008134	Long-Term Care	Care over an extended period, usually for a chronic condition or disability, requiring periodic, intermittent, or continuous care.	Care, Long-Term,Long Term Care
D008607	Intellectual Disability	Subnormal intellectual functioning which originates during the developmental period. This has multiple potential etiologies, including genetic defects and perinatal insults. Intelligence quotient (IQ) scores are commonly used to determine whether an individual has an intellectual disability. IQ scores between 70 and 79 are in the borderline range. Scores below 67 are in the disabled range. (from Joynt, Clinical Neurology, 1992, Ch55, p28)	Disability, Intellectual,Idiocy,Mental Retardation,Retardation, Mental,Deficiency, Mental,Intellectual Development Disorder,Mental Deficiency,Mental Retardation, Psychosocial,Deficiencies, Mental,Development Disorder, Intellectual,Development Disorders, Intellectual,Disabilities, Intellectual,Disorder, Intellectual Development,Disorders, Intellectual Development,Intellectual Development Disorders,Intellectual Disabilities,Mental Deficiencies,Mental Retardations, Psychosocial,Psychosocial Mental Retardation,Psychosocial Mental Retardations,Retardation, Psychosocial Mental,Retardations, Psychosocial Mental
D002648	Child	A person 6 to 12 years of age. An individual 2 to 5 years old is CHILD, PRESCHOOL.	Children
D002675	Child, Preschool	A child between the ages of 2 and 5.	Children, Preschool,Preschool Child,Preschool Children
D005581	Foster Home Care	Families who care for neglected children or patients unable to care for themselves.	Adult Foster Care,Kinship Care,Fostering,Care, Adult Foster,Care, Foster Home,Care, Kinship,Foster Care, Adult
D006699	Home Care Services	Community health and NURSING SERVICES providing coordinated multiple services to the patient at the patient's homes. These home-care services are provided by a visiting nurse, home health agencies, HOSPITALS, or organized community groups using professional staff for care delivery. It differs from HOME NURSING which is provided by non-professionals.	Domiciliary Care,Home Health Care,Care Services, Home,Home Care,Services, Home Care,Care, Domiciliary,Care, Home,Home Care Service,Service, Home Care
D006801	Humans	Members of the species Homo sapiens.	Homo sapiens,Man (Taxonomy),Human,Man, Modern,Modern Man
D000015	Abnormalities, Multiple	Congenital abnormalities that affect more than one organ or body structure.	Multiple Abnormalities
D000203	Activities of Daily Living	The performance of the basic activities of self care, such as dressing, ambulation, or eating.	ADL,Chronic Limitation of Activity,Limitation of Activity, Chronic,Activities, Daily Living,Activity, Daily Living,Daily Living Activities,Daily Living Activity,Living Activities, Daily,Living Activity, Daily