Powerless responsibility: A feminist study of women's experiences of caring for their late preterm babies. 2020

Luisa Cescutti-Butler, and Jaque Hewitt-Taylor, and Ann Hemingway
Bournemouth University, Faculty of Health and Social Sciences, Royal London House, Christchurch Road, Bournemouth BH1 3LT, UK. Electronic address: lcbutler@bournemouth.ac.uk.

OBJECTIVE There is minimal research exploring women's experiences of caring for a late preterm baby. The emphasis in the literature is mostly baby centric. BACKGROUND The number of babies born late preterm is rising and women's views are largely unknown. OBJECTIVE What are the experiences of women who are caring for a late preterm baby? METHODS A feminist lens was the key philosophical underpinning. Semi-structured interviews were undertaken with 14 women. RESULTS Women who become mothers' of late preterm babies have a complex journey. It begins with separation, with babies being cared for in unfamiliar and highly technical environments where the perceived experts are healthcare professionals. Women's needs are side-lined, and they are required to care for their babies within parameters determined by others. Institutional and professional barriers to mothering/caring are numerous. CONCLUSIONS Some of the women who were separated from their babies immediately after birth had difficulties conceiving themselves as mothers, and others faced restrictions when trying to access their babies. Women described care that was centred on their babies. They were allowed and expected to care for their babies, but only with 'powerless responsibility'. Many women appeared to be excluded from decisions and were not always provided with full information about their babies. CONCLUSIONS Women whose babies are born late preterm would benefit from greater consideration in relation to their needs, rather than the focus being almost exclusively on their babies.

UI MeSH Term Description Entries
D007224 Infant Care Care of infants in the home or institution.
D007231 Infant, Newborn An infant during the first 28 days after birth. Neonate,Newborns,Infants, Newborn,Neonates,Newborn,Newborn Infant,Newborn Infants
D007234 Infant, Premature A human infant born before 37 weeks of GESTATION. Neonatal Prematurity,Premature Infants,Preterm Infants,Infant, Preterm,Infants, Premature,Infants, Preterm,Premature Infant,Prematurity, Neonatal,Preterm Infant
D009035 Mothers Female parents, human or animal. Mothers' Clubs,Club, Mothers',Clubs, Mothers',Mother,Mother Clubs,Mother's Clubs,Mothers Clubs,Mothers' Club
D011209 Power, Psychological The exertion of a strong influence or control over others in a variety of settings--administrative, social, academic, etc. Power (Psychology),Power, Personal,Power, Professional,Power, Social,Power,Personal Power,Powers, Psychological,Professional Power,Psychological Power,Psychological Powers,Social Power
D011247 Pregnancy The status during which female mammals carry their developing young (EMBRYOS or FETUSES) in utero before birth, beginning from FERTILIZATION to BIRTH. Gestation,Pregnancies
D004644 Emotions Those affective states which can be experienced and have arousing and motivational properties. Feelings,Regret,Emotion,Feeling,Regrets
D005260 Female Females
D006801 Humans Members of the species Homo sapiens. Homo sapiens,Man (Taxonomy),Human,Man, Modern,Modern Man
D000328 Adult A person having attained full growth or maturity. Adults are of 19 through 44 years of age. For a person between 19 and 24 years of age, YOUNG ADULT is available. Adults

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