Biomaterial Database

A group for parents of children with fatal genetic illnesses. 1988

S A Mack, and L C Berman

Children's Hospital, Boston.

Parents whose children have progressive genetic disorders, such as Tay-Sachs, are confronted with a myriad of painful and compelling issues. This paper describes a long-term, open-ended group set up to allow parents of such children to work together on mutual concerns. The process of collaboration, the evolving structure of the group, and the challenges of working with this special population are explored.

UI	MeSH Term	Description	Entries
D007857	Leadership	The function of directing or controlling the actions or attitudes of an individual or group with more or less willing acquiescence of the followers.	Influentials
D008297	Male		Males
D010290	Parents	Persons functioning as natural, adoptive, or substitute parents. The heading includes the concept of parenthood as well as preparation for becoming a parent.	Step-Parents,Parental Age,Parenthood Status,Stepparent,Age, Parental,Ages, Parental,Parent,Parental Ages,Status, Parenthood,Step Parents,Step-Parent,Stepparents
D002648	Child	A person 6 to 12 years of age. An individual 2 to 5 years old is CHILD, PRESCHOOL.	Children
D005260	Female		Females
D006126	Group Processes	The procedures through which a group approaches, attacks, and solves a common problem.	Group Meetings,Group Process,Group Thinking,Group Meeting,Group Thinkings,Meeting, Group,Process, Group,Thinking, Group
D006127	Group Structure	The informal or formal organization of a group of people based on a network of personal relationships which is influenced by the size and composition, etc., of the group.	Group Structures,Structure, Group,Structures, Group
D006701	Home Nursing	Nursing care given to an individual in the home. The care may be provided by a family member or a friend. Home nursing as care by a non-professional is differentiated from HOME CARE SERVICES provided by professionals: visiting nurse, home health agencies, hospital, or other organized community group.	Home Care, Non-Professional,Nursing, Home,Home Care, Nonprofessional,Care, Non-Professional Home,Care, Nonprofessional Home,Home Care, Non Professional,Non-Professional Home Care,Nonprofessional Home Care
D006801	Humans	Members of the species Homo sapiens.	Homo sapiens,Man (Taxonomy),Human,Man, Modern,Modern Man
D000223	Adaptation, Psychological	A state of harmony between internal needs and external demands and the processes used in achieving this condition. (From APA Thesaurus of Psychological Index Terms, 8th ed).	Behavior, Adaptive,Healthy Adaptation,Positive Adaptation,Psychological Recovery,Adaptation, Psychologic,Adjustment,Psychological Adaptation,Adaptation, Healthy,Adaptation, Positive,Adaptive Behavior,Adaptive Behaviors,Healthy Adaptations,Positive Adaptations,Psychologic Adaptation,Psychological Recoveries,Recovery, Psychological