The dying role: its relevance to improved patient care. 1977

R Noyes, and J Clancy

Society is failing to meet the obligation it has to its dying members. Persons with terminal illnesses suffer isolation and neglect in hospitals, receive overzealous treatment by physicians, and are kept in ignorance of their situation by families and medical personnel. Evidence for these statements has come from observers of the medical care system and from dying patients themselves (Kübler-Ross, 1969; Reynolds and Kalish, 1974; Sudnow, 1967); In the nineteenth century it was common for persons to die in the familiar environs of their homes, surrounded by grieving families from whom they parted in a meaningful manner (Blauner, 1966). Dying persons of today no longer fill a well-defined social role. Instead, the distinction between the roles of sick and dying persons has been lost and, in the resulting confusion, the care of dying people has suffered. The purpose of this article is to clarify the distinction between the dying and sick roles, identify the signs of existing role confusion, suggest ways in which this confusion may be corrected, and show how reestablishment of the dying role can result in improved care of dying people. The important part physicians play in defining sick and dying roles will be emphasized.

UI MeSH Term Description Entries
D003643 Death Irreversible cessation of all bodily functions, manifested by absence of spontaneous breathing and total loss of cardiovascular and cerebral functions. End Of Life,End-Of-Life,Near-Death Experience,Cardiac Death,Determination of Death,Death, Cardiac
D003858 Dependency, Psychological The tendency of an individual or individuals to rely on others for advice, guidance, or support. Dependency Burden,Dependency, Psychology,Psychological Dependence,Psychological Dependency,Burden, Dependency,Dependence, Psychological
D006801 Humans Members of the species Homo sapiens. Homo sapiens,Man (Taxonomy),Human,Man, Modern,Modern Man
D000223 Adaptation, Psychological A state of harmony between internal needs and external demands and the processes used in achieving this condition. (From APA Thesaurus of Psychological Index Terms, 8th ed). Behavior, Adaptive,Healthy Adaptation,Positive Adaptation,Psychological Recovery,Adaptation, Psychologic,Adjustment,Psychological Adaptation,Adaptation, Healthy,Adaptation, Positive,Adaptive Behavior,Adaptive Behaviors,Healthy Adaptations,Positive Adaptations,Psychologic Adaptation,Psychological Recoveries,Recovery, Psychological
D001293 Attitude to Death Conceptual response of the person to the various aspects of death, which are based on individual psychosocial and cultural experience. Attitudes to Death,Death, Attitude to,Death, Attitudes to
D012380 Role The expected and characteristic pattern of behavior exhibited by an individual as a member of a particular social group. Role Concept,Concept, Role,Concepts, Role,Role Concepts,Roles
D012803 Sick Role Set of expectations that exempt persons from responsibility for their illness and exempt them from usual responsibilities. Role, Sick,Roles, Sick,Sick Roles
D012938 Social Perception The perceiving of attributes, characteristics, and behaviors of one's associates or social groups. Perception, Social,Perceptions, Social,Social Perceptions
D013727 Terminal Care Medical and nursing care of patients in the terminal stage of an illness. End-Of-Life Care,End of Life Care,Care, End-Of-Life,Care, Terminal,End-Of-Life Cares

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